I thought that keeping Krista on the gluten free diet would solve all of her issues but it hasn't. There must be something else besides the gluten setting her off. We went to the fair tonight and she was fine the whole time we were there. She had a blast and rode a ton of rides. In the car in the way home she got a headache and started shaking. She's been shaking and having the episodes since we for home. Maybe I let her do too much? I wish I knew what was causing the reactions. :( im hoping she gets enough sleep tonight and doesn't have any issues in the morning. I kind of feel guilty for even taking her now, this all just sucks. :( hopefully the rhumatologist will be able to help us figuer this all out. We don't see him until June 19th though. Sigh. 

She's still having episodes this morning so no school. Ugh wish I knew all the triggers that bring the episodes on! We can only guess why it's so bad this time. This is SO frustrating! :(

After weeks with out any major seizure like issues, only minor shaking, they all cme back tonight. Krista had her 8th grade banquet and must have eaten something or did too much bc she's having a ton of episodes tonight. She has fun at the banquet and didn't shake too much there thank God. We don't see the rhumatologist until June 17th so I guess we will just have to keep waiting to find out what exactly this is, sigh. Hope everyone gets sleep tonight.

Got this from a friend today: http://healthimpactnews.com/2015/gardasil-the-decision-we-will-always-regret/#sthash.WuAMjTEl.gbpl

It's awful what this vaccine is doing to these girls. I'm convinced it did something to her immune system and something that may have been dormate before is now active. 
We still haven't heard from the rhumatologist yet and I've been calling everyday. 
Krista got her report card and despite all the days she's missed she had all A's and B's and once C in math, one point from a B. I'm so proud of her for sticking it out and continuing to go to school despite the pain and shaking. She's super strong. 

Krista is home today, she woke up shaking and hasn't stopped. I called the neurologist again and he's supoosed to have called the rhumatologist. We are waiting for the rhumatologist to call us back. If I don't hear from them by Thursday I will call and get their number. I hate this waiting game crap. She really wants to go to school but I can't send her like this. Maybe resting will help and she can go later today. sigh. 

Finally!!!

Krista isn't crazy and neither am I! Good news is her MRI was normal, bad news is her ANA blood test results were very high. This could, among other things, indicate an autoimmune disorder such as drug induced lupus. I've been saying all along this was an autoimmune disorder! We need to see a rheumatologist to run more tests. Chris sent me a link from a study done in Italy that linked gardasil to lupus. I need to research and read up on all of this as well. I'm just glad that now someone might take us seriously and not believe this is all psychosomatic. I hope we can figuer it out and get her the right treatment. 

Sunday

I'm sorry I deleted your comment Melissa , I was trying to reply! Krista has been doing better but still has a ways to go. She's handling it all a lot better now though. It's like she's getting used to it I guess. We found a really good neurologist and she will be undergoing tests next week. We are also still seeing the naturopathic doctor, physical therapist and a psychologist. They are all helping her to deal with the symptoms. It seems to be a bit better as long as we stick to her diet. When she goes off of it the episodes come back with a vengeance. 

I haven't felt much like blogging bc there isn't anything new to report. We just are taking it day by day. 

:(