Wednesday, April 29, 2015

I thought that keeping Krista on the gluten free diet would solve all of her issues but it hasn't. There must be something else besides the gluten setting her off. We went to the fair tonight and she was fine the whole time we were there. She had a blast and rode a ton of rides. In the car in the way home she got a headache and started shaking. She's been shaking and having the episodes since we for home. Maybe I let her do too much? I wish I knew what was causing the reactions. :( im hoping she gets enough sleep tonight and doesn't have any issues in the morning. I kind of feel guilty for even taking her now, this all just sucks. :( hopefully the rhumatologist will be able to help us figuer this all out. We don't see him until June 19th though. Sigh. 

Friday, April 17, 2015

She's still having episodes this morning so no school. Ugh wish I knew all the triggers that bring the episodes on! We can only guess why it's so bad this time. This is SO frustrating! :(

Thursday, April 16, 2015

After weeks with out any major seizure like issues, only minor shaking, they all cme back tonight. Krista had her 8th grade banquet and must have eaten something or did too much bc she's having a ton of episodes tonight. She has fun at the banquet and didn't shake too much there thank God. We don't see the rhumatologist until June 17th so I guess we will just have to keep waiting to find out what exactly this is, sigh. Hope everyone gets sleep tonight.