Tuesday, January 20, 2015

Day 9 I think

Today didn't start off well. I tried taking Krista to school this morning. She started having episodes in the car on the way, like four of them. I knew that wasn't a good sign. When we got to the school she shook the entire time. She had shoulder twitches and arm/leg shakes. I think it was worse this morning because she was nervous and anxious about going back. She's embarrassed by all of this and who can blame her. We talked to the vice principal and the school nurse and they were both very helpful/ understanding. They told us Krista could do all of her work in the ISS room and even eat lunch there. I think for this year, until we get this figured out, that's a great idea. There are very few kids in there and one teacher. Although she will be missing her class lectures,she will get all of the work and the teacher will help her if needed. Since in the majority of her classes they are covering things she's already learned at MA in colorado, I think this will work. Math is the only subject I'm worried about because it's not her strong point. They said once she gets comfortable she can go to class whenever she wants. Of course after we left the school, she stopped shaking and was calm for a while. If she gets scared or nervous it acts up big time. She will have to learn to relax I guess. 
Once we got home a new symptom showed up, eye twitches/flutters/spasms I don't know what to call them, flutters I guess is the best word. I started to freak out a bit bc it looked freaking scary, like everything else, but kept it together for her. She didn't seem too upset about it. She's a trooper. She's only a little upset after it's over and the pain sets in. She's almost always in good spirits. Anyway, I called children's hospital and asked if they could move up the EEG due to the new symptoms she seems to get daily. They moved it to this Friday, TG. After I got over the flutter eye shock ( she would laugh if she read that because she loves "flutter shy" on MLP) we had a better day. I made an appointment with a Naturopathic Doctor in Birmingham. I've had a few people suggest we see one. My husband won't care for this but I'm going to try all options. She will get Krista on a diet plan that will help her nervous system/immune system and anything else that might need fixing. I think the vaccine triggered some kind of autoimmune respose in her body, like the toxins affected her spinal cord. I'll be very surprised if they actually find something on the EEG. That's just my gut feeling and I'm no doctor, so like I said, we are going to explore all options and a I don't believe the Naturopathic Doctor will hurt. 
I'm also talking to a lady (Robin) over email whose daughter went through this five years ago. She received two vaccinations for HPV and her symptoms are almost identical to Krista's. Robin is so nice and understanding. She always gets back to me right away and I'm thankful I have her to talk to. She said her daughter had the flutter eye thing too and that this will all just take some time to ease up a bit. Her daughter is a lot better now than she was back then but she had to completely change her lifestyle. Krista has already given up sugar, caffeine, gluten and we are working on dairy. We are all going to make healthier life style changes, like I keep saying over and over to my husband, it can't hurt, right?! Hopefully she will have a good night tonight. I'm going to try the natural calm again and we tried Epsom salts in her bath. Fingers crossed! :) 

3 comments:

  1. I'm glad you started the Epsom salt baths......there are a few other essentials you need for a great detox from vaccines but the Epsom salt is certainly a great start......along with the diet changes. Continued thoughts and prayers your way. What you are going through right now is my worst nightmare. Prayers for peaceful sleep tonight.

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  2. Sometimes you just have to go with your gut feeling. I definitely love the change of diet and epsom salt ideas. Whatever you can do to flush that out of her system.

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  3. Thanks!! It's been a good day so far!

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