Sunday, January 18, 2015

Day 7

Today was a bit better than yesterday. Krista made it through religion with few seizure like episodes. She had a shoulder shake and hand/arm shake and that was it. She was fine all afternoon until about 3:30. She had an all body spasm for about three min. After that she only had a few shakes, which she didn't notice but I did, until just now when she had another all body shake. She is finding it hard to breath during the seizure like all body shakes which has me concerned. Maybe a psychologist might be able to help her calm herself and breath during the shakes. I, in no way, think this is psychosomatic but any help we can get with it I will gladly accept!
I'm so scared about her going back to school Tuesday. I hope the doctor doesn't just blow us off tomorrow and actually listens and tries to help. Krista is still in pretty good spirits but I know she's scared that she will have an all body spasm at school.
I've been talking to another mom, whose little girl went though this five years ago, on email and she recommended we go gluten free, dairy free, get her on vitamins A and D and get her on this shake natural something, I can't remember the name but I ordered it. It has magnesium that she says helps a lot. Krista only had one shot and is reacting like this but her daughter had all three. I wonder why it affected krista this severely with one. I'm thankful she doesn't have paralysis or any other more severe symptoms. If it wasn't for the full body episodes we could handle this ok. I hope those ease up or stop soon. I will be sleeping in her room tonight at least until early morning. I'd hate for her to feel alone and be sleeping down stairs if she has another episode. I wish I could go back in time and say no to that damn vaccine. Edited to add: she's had at least five more full body episodes. These were more violent than the rest but she stayed calm and we got through them. She's sleeping now and I pray to God that she will sleep with no more issues for the rest of the night. 

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