She's still having episodes this morning so no school. Ugh wish I knew all the triggers that bring the episodes on! We can only guess why it's so bad this time. This is SO frustrating! :(

After weeks with out any major seizure like issues, only minor shaking, they all cme back tonight. Krista had her 8th grade banquet and must have eaten something or did too much bc she's having a ton of episodes tonight. She has fun at the banquet and didn't shake too much there thank God. We don't see the rhumatologist until June 17th so I guess we will just have to keep waiting to find out what exactly this is, sigh. Hope everyone gets sleep tonight.

Got this from a friend today: http://healthimpactnews.com/2015/gardasil-the-decision-we-will-always-regret/#sthash.WuAMjTEl.gbpl

It's awful what this vaccine is doing to these girls. I'm convinced it did something to her immune system and something that may have been dormate before is now active. 
We still haven't heard from the rhumatologist yet and I've been calling everyday. 
Krista got her report card and despite all the days she's missed she had all A's and B's and once C in math, one point from a B. I'm so proud of her for sticking it out and continuing to go to school despite the pain and shaking. She's super strong. 

Krista is home today, she woke up shaking and hasn't stopped. I called the neurologist again and he's supoosed to have called the rhumatologist. We are waiting for the rhumatologist to call us back. If I don't hear from them by Thursday I will call and get their number. I hate this waiting game crap. She really wants to go to school but I can't send her like this. Maybe resting will help and she can go later today. sigh. 

Finally!!!

Krista isn't crazy and neither am I! Good news is her MRI was normal, bad news is her ANA blood test results were very high. This could, among other things, indicate an autoimmune disorder such as drug induced lupus. I've been saying all along this was an autoimmune disorder! We need to see a rheumatologist to run more tests. Chris sent me a link from a study done in Italy that linked gardasil to lupus. I need to research and read up on all of this as well. I'm just glad that now someone might take us seriously and not believe this is all psychosomatic. I hope we can figuer it out and get her the right treatment. 

Sunday

I'm sorry I deleted your comment Melissa , I was trying to reply! Krista has been doing better but still has a ways to go. She's handling it all a lot better now though. It's like she's getting used to it I guess. We found a really good neurologist and she will be undergoing tests next week. We are also still seeing the naturopathic doctor, physical therapist and a psychologist. They are all helping her to deal with the symptoms. It seems to be a bit better as long as we stick to her diet. When she goes off of it the episodes come back with a vengeance. 

I haven't felt much like blogging bc there isn't anything new to report. We just are taking it day by day. 

:( 

After a pretty good weekend and good day at school Monday, krista is home today with new symptoms. She now goes limp in her legs and falls to the floor, her arms also go limp and she can't move them. It's lasting from one to five min. I'm scared it might be guillain barre syndrome so I'm keeping an eye on her today and we might end up back in the ER. It keeps happening over and over. Ugh this can't be good. I'll update later. :( 
And of course the doctor just called and said more PT!!!! Ugh. 

Update: two neurologists examined her and said conversions disorder. We saw a psychologist right after we finished up in the ER. He will try to treat her for conversion disorder. I am tired and don't feel like fighting with the doctors anymore. I don't know if the gluten free diet and everything else we are doing is even helping. Right when I think it's helping and she's getting better we have another MAJOR setback and another symptom shows up. We are back at square one and starting over again. I know the vaccine triggered something but at this point I don't give a damn what they want to call it, I just want it gone and for her to be like she was before the vaccine! Normal!!