Tuesday, February 10, 2015

After a pretty good weekend and good day at school Monday, krista is home today with new symptoms. She now goes limp in her legs and falls to the floor, her arms also go limp and she can't move them. It's lasting from one to five min. I'm scared it might be guillain barre syndrome so I'm keeping an eye on her today and we might end up back in the ER. It keeps happening over and over. Ugh this can't be good. I'll update later. :( 
And of course the doctor just called and said more PT!!!! Ugh. 

Update: two neurologists examined her and said conversions disorder. We saw a psychologist right after we finished up in the ER. He will try to treat her for conversion disorder. I am tired and don't feel like fighting with the doctors anymore. I don't know if the gluten free diet and everything else we are doing is even helping. Right when I think it's helping and she's getting better we have another MAJOR setback and another symptom shows up. We are back at square one and starting over again. I know the vaccine triggered something but at this point I don't give a damn what they want to call it, I just want it gone and for her to be like she was before the vaccine! Normal!! 

2 comments:

  1. I look forward to your updates in hopes that there will be improvement.

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    1. Thanks for all of your comments and support. She was pretty good this morning. I guess we just have to take this day by day.

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